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Consumer Advisory Group

Seeking people with pulmonary fibrosis and their caregivers to help guide pulmonary fibrosis research

The PACT Network is looking for consumer representatives (people living with pulmonary fibrosis and their caregivers) to join our PACT Consumer Advisory Group.

Members of the PACT Consumer Advisory Group provide feedback and advice to the PACT Steering Committee on issues or proposals that require, or would benefit from, consumer input. These may include, but are not limited to:

  • Priority areas for research in pulmonary fibrosis
  • Proposed clinical trials
  • Proposed research plans, or outcome measures to be used in research
  • Dissemination of information about current clinical trials and research findings
  • Governance of the PACT Network
  • Consumer participation in research.

What does membership of the PACT consumer advisory group involve?

The PACT Network Consumer Advisory Group will have up to 10 members, comprising people with pulmonary fibrosis and their caregivers. The work of the Consumer Advisory Group will be supported by the Centre for Research Excellence in Pulmonary Fibrosis and the PACT Network.

 

The PACT Network Consumer Advisory Group will meet three times per year, primarily by teleconference. Occasional face to face meetings may be held, with the option of attending by teleconference. Training on consumer engagement in research will be provided.

 

The role is voluntary but reasonable costs associated with attending meetings will be reimbursed. A sitting fee for meetings may be provided.

Successful applicants will be:

  • A person living with pulmonary fibrosis (any diagnosis)
    OR the caregiver for such a person
  • Able to commit to participating in 3 meetings per year, generally by teleconference
  • Able to represent a personal experience of living with pulmonary fibrosis, or caring for someone with pulmonary fibrosis
  • Interested in research
  • Able to communicate by email and on the telephone
  • Open to sharing their own knowledge and experience and hearing the views of others
  • Able to work collaboratively.

If you are interested in finding out more about the Centre for Research Excellence in Pulmonary Fibrosis, the PACT Network or this position, please contact:

Alison Hey-Cunningham

Centre of Research Excellence in Pulmonary Fibrosis

Email: alison.hey-cunningham@sydney.edu.au

Ph: 0418 615 976