Research offers hope and undisputed benefits for people living with a lung disease. The Pulmonary Fibrosis Australasian Clinical Trials (PACT) Network is a collaboration uniting the Centre for Research Excellence in Pulmonary Fibrosis, leading pulmonary fibrosis specialists, and Lung Foundation Australia to design and deliver high quality clinical trials and studies that will provide hope and improved outcomes for people living with pulmonary fibrosis.
Our mission is to reduce the morbidity and mortality associated with pulmonary fibrosis and improve the quality of life for people living with pulmonary fibrosis, their carers and families through the facilitation and coordination of high quality clinical research.
- Support investigator driven pulmonary fibrosis research through peer reviews, facilitating collaboration and streamlining HREC/governance approval processes.
- Engage with consumers to improve access to current information and increase awareness about pulmonary fibrosis clinical research in Australasia.
- Support pharma-sponsored pulmonary fibrosis research through advocating for Pulmonary Fibrosis research to be conducted in Australasia and assisting sponsors/CROs in identifying suitable sites.
- Advocate for and actively disseminate research outcomes and translate research into practice.
PACT was established in 2017 as a key objective of the Centre for Research Excellence – Pulmonary Fibrosis (CRE-PF). The CRE-PF is a comprehensive and integrated clinical research program that aims to change the approach to pulmonary fibrosis in Australia.
PACT Steering Committee
The PACT Network is facilitated by a Steering Committee that provide strategic direction and guidance to projects undertaken by the trials group.
The role of Lung Foundation Australia
Lung Foundation Australia manages the PACT Network in partnership with the PACT Network Steering Committee Members.
In addition, Lung Foundation Australia’s Idiopathic Pulmonary Fibrosis (IPF) Registry will play a key role in driving patient and clinician involvement in pulmonary fibrosis research and trials. The Registry collects data from IPF patients who have volunteered to participate in the registry. This data and information provides a platform to facilitate research, improve clinical management practices and maximise opportunities for patients to participate in clinical trials.
For more information about Lung Foundation Australia and our IPF Registry, please visit our main website.